Support Group

Acoustic Neuroma Support Group

At Stanford, we have treated over 1,000 acoustic neuromas over the last 20 years with surgery and radiosurgery. The Stanford Cyberknife Program is one the most active and experienced Cyberknife programs for acoustic neuromas in the US.

Acoustic neuroma, also known as vestibular schwannoma, is a slow-growing benign tumor that develops on the nerve that connects the ear and the brain. The tumor usually starts growing in the internal auditory canal, and presses against the hearing and balance nerves as it grows.

If you have been diagnosed with acoustic neuroma, and have questions or wish to explore treatment options and coping strategies with other patients and clinical experts, please join us for upcoming Stanford Acoustic Neuroma Support Group meetings.

The meetings are free of charge, and are a great resource for patient education and resources available to acoustic neuroma patients and families. Support group meetings will be co-moderated by acoustic neuroma patients. The meetings consist of 20 minutes speaker presentation, 20 minutes patients' presentations of their own experiences, and open forum for discussion. Also, leading Stanford Neurosurgeon and acoustic neuroma expert Steven D. Chang, MD will join for a Q&A session at the end of each meeting.

The Stanford Acoustic Neuroma Support Group meets bimonthly on the first Thursday of the even month from 6 p.m. to 7 p.m. Speakers will be available for questions.

PLEASE NOTE: New driving directions & parking information effective October 2013. Click here for more information.

Upcoming Talks:

October 2, 2014: TBD

December 4, 2014: TBD

Past Talks:

August 7, 2014: "How Acoustic Neuroma Pre-Treatment Symptoms Respond After Treatment" by Steven D. Chang, MD, Professor, Department of Neurosurgery, Stanford University School of Medicine

June 5, 2014: "Current status of hearing aids for patients with acoustic neuromas", by Gerald Popelka, PhD, Department of otolaryngology, Stanford University School of Medicine

April 3, 2014: "The role of a neuro-oncologist in the management of acoustic neuroma patients" By Reena Thomas, MD, Department of Neurology, Stanford University School of Medicine

February 6, 2014: "Coping with the diagnosis of Acoustic Neuroma", by Bret Schneider, MD, Psychiatrist and Consulting Assistant Professor of Neurosurgery, Stanford University

December 5, 2013: "History of Acoustic Neuroma Treatments with a Q&A", by Dr. Robert Jackler, MD, Professor, Department of Otolaryngology-Head and Neck Surgery, Stanford University.

October 3, 2013: "Acoustic Neuroma Case Presentations and Panel Discussion"

June 6, 2013: "Questions to ask yourself when seeking treatment for your Acoustic Neuroma", by Steven Chang, MD, Professor, Department of Neurosurgery, Stanford University

April 4, 2013: "Understanding Radiation: What It Is and How It Works", by Iris Gibbs, MD, Associate Professor, Department of Radiation Oncology, Stanford University School of Medicine

February 7, 2013: "Causes and treatments for tinnitus", by Steven D. Chang, MD, Professor, Department of Neurosurgery, Stanford University School of Medicine

December 6, 2012: "Common Eye Problems and Optimal Eye Care Related to Acoustic Neuroma", by Steven D. Chang, MD, Professor, Department of Neurosurgery, Stanford University School of Medicine

October 4, 2012: "Acoustic Neuroma Case Presentations and Panel Discussion", by Iris Gibbs, MD, Associate Professor of Radiation Oncology; Nikolas Blevins, MD, Professor of Otolaryngology; and Gordon Li, MD, Assisstant Professor of Neurosurgery

August 2, 2012: "Dealing with balance through vestibular therapy", by Joyce Chadderdon, Vestibular Physical Therapist

June 7, 2012: "Treatments for Acoustic Neuromas - Myths and facts regarding the different options" by Steven D. Chang, MD Professor, Department of Neurosurgery, Stanford University

April 5, 2012: "Anxiety, depression, and coping with the diagnosis of Acoustic Neuromas" by M. Bret Schneider, MD, Diplomate, American Board of Psychiatry and Neurology

February 2, 2012: "Current status of hearing aids for Acoustic Neuroma patients" by Gerald R Popelka, PhD, Professor and Chief of Audiology, Otolaryngology-Head and Neck Surgery, Stanford University

December 1, 2011: "Nutrition and Nutritional Supplementation in patients with Acoustic Neuromas" by Alison Ryan, Registered Dietitian, Stanford University Medical Center

October 6, 2011: "Causes and treatment of headaches in acoustic neuroma patients" by Dr. Michael Leong, MD, Assistant Professor, Stanford Pain Clinic, Department of Anesthesia, Stanford

August 4, 2011: "Update from the 2011 Natational Acostic Neuroma Association Meeting, Cincinnati, Ohio" by Dr. Scott Soltys, MD, Assistant Professor, Department of Radiation Oncology, Stanford

April 7, 2011: "Controversies in diagnosis and management of Acoustic Neuromas" by Steven D. Chang, MD Professor Department of Neurosurgery, Stanford University

February 3, 2011: "Vestibular Therapy for Management of Balance Disorders in Acoustic Neuroma Patients" by Diron Cassidy, MPT Good Samaritan Hospital

December 2, 2010: "Tinnitus in Acoustic Neuroma Patients" by John S. Oghalai, MD Associate Professor, Department of Otolaryngology-Head and Neck Surgery, Stanford University

October 7, 2010: "Hearing Tests and Hearing Aids for Acoustic Neuroma Patients" by Gerry Popelka, PhD, Stanford Audiologist

August 5, 2010: "Current Medical Literature on Acoustic Neuroma" by Scott Soltys, MD, Stanford Clinical Assistant Professor of Radiation Oncologist

June 3, 2010: "Balance Issues and Treatments in Acoustic Neuroma Patients" by Nikolas Blevins, MD, Stanford Associate Professor of Otolaryngology

April 1, 2010: "Current Treatment Modalities for Acoustic Neuroma" by Steven D. Chang, MD, Stanford Professor of Neurosurgery

New

Event Details

First Thursday of even months
6 p.m. – 7 p.m.

Next Dates: 10/2, 12/4

Contact Aysha Ali for information or to make a reservation: 650-736-1134