Multidisciplinary Center for Treating Marfan Syndrome and Related Aortic Disorders

The Center for Marfan Syndrome and Related Aortic Disorders is the largest of its kind in California and among the nation's leading centers for the diagnosis and treatment of Marfan syndrome. We ensure that patients with Marfan syndrome and aortic disorders have access to comprehensive diagnostic and management services from specialists in cardiology, cardiovascular surgery, ophthalmology, orthopedics, and genetics.

Center for Marfan Syndrome and Related Aortic Disorders
211quarryrd-paloalto
300 Pasteur Drive
Stanford, CA 94305
Phone: 650-725-8246 Getting Here
Maps & Directions
300 Pasteur Drive
Stanford, CA 94305
Phone: 650-725-8246 Getting Here
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Our Doctors

Care and Treatment of Marfan Syndrome

FAQs

Does your center see other patients, besides those with the Marfan syndrome?

Yes, we offer consultative diagnostic and follow-up services for those patients thought to have other related aortic disorders that include familial aortic disease, Bicuspid aortic valve disease, aortic aneurysmsmitral valve prolapse and aortic dissection.

What are typical appointments needed for a new patient evaluation?

A thorough evaluation for the Marfan syndrome and related aortic disorders would include:

  • Echocardiogram with Color/Doppler and/or CT Angiogram of the chest and abdomen
  • An appointment with one of our cardiologists who specializes in Marfan syndrome and related aortic disorders which includes:
    • A thorough evaluation of the Stanford Echo/CT Angiogram and/or outside films the patient brings with them
    • A review of detailed medical and family history
    • An evaluation of outside medical records
    • A complete physical examination.

If any of these evaluations have been performed recently elsewhere, please bring this to our attention when scheduling your appointments with us.

Do you accept self-referrals?

Yes, at present we accept both physician and self-referrals.

Are you able to determine over the phone as to whether I should be seen?

Unfortunately, we are not in a position to diagnose anyone over the phone.

If you suspect that you have the Marfan syndrome or an aortic disorder based on what you have read or on the recommendation of your physician or other affected family members, then it would be appropriate to be seen for an initial evaluation.
 
If you already carry a diagnosis of Marfan syndrome or a diagnosis of a known aortic disorder and wish to be seen, this is certainly appropriate.

Will my insurance cover appointments through the Stanford Center for Marfan Syndrome?

There are so many different insurance companies and different policies written by a company that if you have questions about your policy, we ask that you call and speak with your insurance company directly. 


If you belong to an HMO or other group health care plan that requires you to get an authorization from your primary provider, please contact that individual. A written authorization from that physician authorizing each appointment and test that you will need is required before we can schedule your appointments.

You can fax these to us ahead of time by sending to 650-724-4034.
 Should your insurance company or primary care physician have questions regarding your appointments, they may call 650-725-8246 for additional information.

Can you advise me regarding physical activity restrictions prior to my appointment?

No, because we have not formally evaluated you yet. It would be presumptuous on our part and not in your best interest to either place or lift any physical restrictions imposed on you by other physicians. 

For Patients

Stanford Health Care (formerly Stanford Hospital & Clinics) is known worldwide for the advanced patient care provided by its doctors and staff.  We also provide a wide range of guest services and amenities to our patients and visitors. Learn more about preparing for a hospital stay, billing and financial services, and our other support programs in Patients & Visitors.  

PREPARE FOR YOUR APPOINTMENT

Please bring any relevant medical records and family information to your appointment, such as:

  • Echocardiogram reports
  • CT scans or MRIs of the chest and abdomen
  • Dilated eye examination
  • Any genetic evaluations
  • Photos of various relatives
  • Autopsy reports, if pertinent

International Patients
Phone: +1 650-723-8561
Email: IMS@stanfordmed.org

Call us to make an appointment

650-725-8246

Resources

For Health Care Professionals

PHYSICIAN HELPLINE

Phone: 1-866-742-4811
Fax: 650-320-9443
Monday – Friday, 8:30 a.m. – 5 p.m.

Stanford Health Care (formerly Stanford Hospital & Clinics) provides comprehensive services to refer and track patients, as well as provides the latest information and news for physicians and office staff. For help with all referral needs and questions visit Referring Physicians.

HOW TO REFER

Fax a referral form with supporting documentation to 650-320-9443.

To refer patients directly to the Center for Marfan Syndrome and Related Aortic Disorders, please call our coordinator Sunny Pellone at 650-725-8246.

Track your patients' progress and communicate with Stanford providers securely online.

Learn More About PRISM »