Neurofibromatosis Support Group
Open to patients, caregivers, family, and friends. This group is designed to provide mutual support and education to members who may feel a little less alone by meeting with others whose situations are similar to their own. Family support groups work in conjunction with a patient's medical treatment. No registration necessary, please just drop in! Refreshments will be provided.
At Stanford, we understand the complexity of a patient's medical need and offer support to patients with Neurofibromatosis. This group is designed to provide mutual support and education to members who may feel a little less alone by meeting with others whose situations are similar to their own. Family support groups work in conjunction with a patient's medical treatment.
The meetings are free of charge and are a great resource for patient and family education. The meetings consist of 20 minutes speaker presentation, 20 minutes patients' presentations of their own experiences, and open forum for discussion. Also, leading Stanford Neurosurgeon, Steven D. Chang, MD, will join for a Q&A session at the end of each meeting.
PLEASE NOTE: New driving directions & parking information effective October 2013. Click here for more information.
September 10, 2014: TBD
November 12, 2014: TBD
July 9, 2014:
March 12, 2014: "Coping with stress and anxiety" by Bret Schneider, MD, Psychiatrist and Consulting Assistant Professor of Neurosurgery, Stanford University
September 11, 2013: "Navigating referrals, insurance appeals and denials" by Maria Ronquillo, Cyberknife Coordinator
July 10, 2013: "The role of Avastin treatment" by Lawrence Recht, MD, Professor of Neurology-Oncology & Neurosurgery
May 8, 2013: "Role of Nutrition and Chronic Diseases" by Erica Connor, Oncology Dietician
March 13, 2013: "Maintaining self-esteem" by Bret Schneider, MD, Psychiatrist and Consulting Assistant Professor of Neurosurgery, Stanford University
November 14, 2012: "Introduction of Stanford Neurogenetics Program" by Steven Chang, MD, Professor of Neurosurgery
Second Wednesday of every other month
Stanford Cancer Center
Conference Rooms CC2103-2104
875 Blake Wilbur Drive
Stanford, CA 94305
Valet parking provided.
All supportive care support groups are free.