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The Adult Cystic Fibrosis Advisory Council (ACFAC) provides feedback to and partners with members of the healthcare team to improve the patient and family experiences and care at Stanford. The Advisory Council is committed to the betterment and excellence of the entire Cystic Fibrosis Center at Stanford.
Designed and implemented a CF at Stanford’s new hospital (near unit M6)
Documented, highlighted, and shared the inpatient and outpatient continuum of care to educate staff about the CF patient experience
Drafted and finalized a Journey to Transplant, a flyer documenting the CF experience on the road to transplant.
Created an implemented an info sheet on the appropriate use of masks for CF patients.
Partnering with the CF clinic to implement virtual visits for CF patients
Ongoing collaboration with the MyHealth design team