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Multidisciplinary Care of Adult Congenital Heart Defects
The Adult Congenital Heart Program— a collaboration between Lucile Packard Children's Hospital Stanford and Stanford Health Care—provides comprehensive care to patients with congenital heart defects. Our multi-disciplinary team, comprised of cardiologists board certified in adult congenital heart defects, focuses on adult care and support for patients with congenital heart defects in their adult stages of life.
Care and Treatment of Adult Congenital Heart Defects
Frequently Asked Questions (FAQs)
Are your services covered by insurance?
Depending on your insurance coverage, most often the services are covered if you have been diagnosed with congenital heart disease. It is always best to check with your insurance company first.
How do I reschedule my appointment?
If you need to reschedule your appointment for any reason, please call us at 650-724-9220. We appreciate a call at least one week prior to your new patient visit if your plans change for any reason.
As a pediatric patient, how do I transition to an adult cardiologist?
The Adult Congenital Heart Program at Stanford Health Care offers a seamless transition from pediatric to adult oriented care with a specialized program specifically designed for adolescent and adult patients. Also, visit iheartchange.org to find resources for pediatric patients with congenital heart disease who are transitioning to adult care.
Today there are more adult survivors of congenital heart disease than children with congenital heart disease. A new report offers guidance on other organs that can be impacted by congenital heart disease.
Jimmy Kimmel’s heart-wrenching monologue on how his newborn son was diagnosed with congenital heart disease brought awareness to this prevalent birth defect. Christy Sillman, a nurse at Lucille Packard Children’s Hospital, who was also born with the same type of heard condition as Jimmy Kimmel’s son, shares her story and how she is managing her CHD as an adult.
Clinical trials are research studies that evaluate a new medical approach, device, drug, or other treatment. As a Stanford Health Care patient, you may have access to the latest, advanced clinical trials.
Open trials refer to studies currently accepting participants. Closed trials are not currently enrolling, but may open in the future.
Before your visit, please mail or fax all records related to your congenital heart defect care. Include clinical notes, imaging reports and discs, surgical and catheterization reports, and hospital discharge summaries. Our team will review these records and order appropriate tests.
You will be emailed a patient questionnaire form; please fill this out and bring it to your appointment.
Please bring the results of any requested laboratory tests.
Arrive 15 minutes before your scheduled appointment.
Most appointments at clinic have tests scheduled prior to your medical appointment; make sure you know what time your tests are scheduled.
Plan to be at the clinic for approximately two hours.
Stanford Health Care provides comprehensive services to refer and track patients, as well as the latest information and news for physicians and office staff. For help with all referral needs and questions, visit Referring Physicians.
Patients benefit from receiving quality coordinated care offered by our multidisciplinary team. Through evidence-based practice and research, our team works together to promote the best healing environment at Stanford Health Care.
HOW TO REFER
To refer a patient, call us at 650-724-9220. Fax a referral form with supporting documentation to 650-320-9443.