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The Stanford Clinical Neurogenetic Oncology Program is the first clinic in Northern California to offer world-class care for patients with clinical neurogenetic disorders, which can cause tumors to grow inside the brain, spinal cord, organs, skin and skeletal bones.
Neurogenetic Oncology Program at Stanford Neuroscience Health Center
Clinical neurogenetic syndrome is a broad term for a group of neurologic (brain, spine, and peripheral nerve) disorders. These diseases are life-long conditions that can cause tumors to grow inside the brain, spinal cord, organs, skin, and skeletal bones.
Types of clinical neurogenetic syndromes include the following:
Tuberous sclerosis (TS)
A rare multi-system genetic disease that causes non-malignant tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin.
Inherited disorders of the nervous system which affect how nerve cells form and grow, causing tumors to grow on nerves.
A rare congenital neurological and skin disorder characterized by a port-wine stain located on the face, typically near or around the eye and forehead area. Individuals may also experience seizures, muscle weakness, changes in vision, and mental retardation.
When she learned she had a malignant brain tumor, Marjorie Paulsen appreciated both the medical treatment at Stanford and the positive attitude of her care team.
For your convenience, you may check in for all same-day appointments at the Stanford Neuroscience Health Center through a centralized, check-in desk near the front lobby. In addition to all outpatient services, you also can access onsite pre-surgery consultations at the center.
New patients should call the Neurogenetics Program Coordinator at 650-736-0262 to schedule an appointment.
Stanford Health Care provides comprehensive services to refer and track patients, as well as provides the latest information and news for physicians and office staff. For help with all referral needs and questions visit Referring Physicians.
HOW TO REFER
Refer any adult patient with a clinical neurogenetic autosomal dominant or autosomal recessive genetic disease to the Clinical Neurogenetics Program Coordinator at 650-736-0262 or VeeVo@stanfordmed.org.