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We take a comprehensive approach to caring for families with a congenital muscular dystrophy. We recognize these diseases affect the entire family and tailor our care to provide medical treatments for the patient's unique health needs, plus supportive care for parents and other family members.
We treat the muscle-related symptoms and collaborate with our colleagues in other departments, including cardiovascular and pulmonary (lungs and breathing), to coordinate treatments for symptoms that do not directly affect the muscles.
Treating Congenital Muscular Dystrophy: What to Expect
The Neuromuscular Program at Stanford provides comprehensive care in one location for congenital muscular dystrophy patients.
Treatment of CMD may include:
Medications to relieve symptoms
Physical therapy for muscle weakness
Respiratory therapy for breathing issues
Occupational therapy for swallowing difficulties
Behavioral therapy to address cognitive function
Diet and nutrition counseling for patients with difficulty chewing or swallowing
Social work consultations to connect you with community resources
Congenital Muscular Dystrophy Clinical Trials
Stanford investigators are participating in research studies to increase their understanding of genes that may cause congenital muscular dystrophy and to investigate new treatment approaches for the disease.