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Specific treatment for osteogenesis imperfecta will be determined by your physician based on:
Your age, overall health, and medical history
Extent of the disease
Your tolerance for specific medications, procedures, or therapies
Expectations for the course of the disease
Your opinion or preference
To date, there is no known treatment, medicine, or surgery that will cure osteogenesis imperfecta (OI). The goal of treatment is to prevent deformities and fractures and allow the child to function as independently as possible.
Treatments for preventing or correcting symptoms may include:
Care of fractures
Rodding - a procedure to insert a metal bar the length of a long bone to stabilize it and prevent deformity.
Assistive devices, such as wheelchairs, braces, and other custom-made equipment
Management of osteogenesis imperfecta (OI)
Management of the disease includes focusing on preventing or minimizing deformities, and maximizing the individual's functional ability at home and in the community. Management of OI is either non-surgical or surgical.
Non-surgical interventions may include one or more of the following:
Positioning aids (to help sit, lie, or stand)
Braces and splints (to prevent deformity and promote support or protection)
Surgical interventions may be considered to manage the following conditions:
Bowing of bone
Scoliosis - a lateral, or sideways curvature and rotation of the back bones (vertebrae), giving the appearance that the person is leaning to one side.
Surgery may also be considered to maintain the ability to sit or stand.
Long-term outlook for an individual with osteogenesis imperfecta (OI)
Osteogenesis imperfecta (OI) is a progressive condition that needs life-long management to prevent deformity and complications. The interdisciplinary healthcare team helps the family to improve the functional outcomes and to provide support.
The Osteogenesis Imperfecta Society can also be an important resource.