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About 95% of those with HHT have recurring nosebleeds.
95% of HHT patients have telanglectases in the skin of the hands, face and mouth that generally become apparent in their 30s or 40s.
GI bleeding will develop in about 25% of HHT patients (after age 50) which can result in black stools or anemia.
30% will have one or more AVM in the lung that is life threatening should it rupture. Pregnant women with HHT are at increased risk of AVM rupture in the lung due to an increase in blood volume and cardiac output in the last trimester. Patients with lung AVMs are also at risk for stroke or a brain abscess from the lack of capillaries to filter impurities like clots, bacteria and air bubbles.
Brain AVMs are found in 15% of HHT patients and can be life threatening.
Spinal AVMs are fairly rare and cause back pain or loss of feeling/function in arms and legs.