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Treatments
Though VHL is a rare condition, it is not rare at Stanford Health Care. Our specialists have deep knowledge and experience in managing VHL. We draw upon specialists across the health system and use the most advanced technology to treat all types of VHL tumors. Because VHL differs for each person, you receive personalized, lifelong care.
- An internationally recognized team of specialists with expertise in the latest tests and treatments for VHL.
- Advanced treatment options, including interventional radiology, CyberKnife®, radiation therapy, and minimally invasive approaches to surgery.
- Team-based approach with world-renowned specialists across Stanford Medicine working collaboratively to meet your unique needs.
- Clinical trials to provide early access to promising therapies available only at Stanford Medicine.
- Ease of access to treatment at our Neuroscience Health Center, a state-of-the-art facility that provides complete care at a single, convenient location.
- Comprehensive support services to help you and your family focus on health and healing.
Connect to Care
Let us help find personalized care options for you and your family.
Interested in an Online Second Opinion?
The Stanford Medicine Online Second Opinion program offers you easy access to our world-class doctors. It’s all done remotely, and you don’t have to visit our hospital or one of our clinics for this service. You don’t even need to leave home!
Visit our online second opinion page to learn more.
Your care includes a treatment plan tailored to your specific condition and needs. Because VHL may affect several body systems, we coordinate your treatments and visits to provide a streamlined experience for you and your family.
If your doctor detects a tumor during routine screening, they may choose to watch and wait. This approach involves close monitoring to detect changes in the tumor that require intervention.
For symptomatic or cancerous tumors, your doctor may recommend:
Medical therapy includes a range of anticancer drugs given orally or intravenously. These drugs act by destroying tumor cells or slowing their growth. Types of medications include:
Interventional radiology is a nonsurgical option for renal cell carcinoma. Our interventional radiologists apply cancer treatment directly to the tumor using several techniques, including:
- Chemoembolization: This procedure uses beads coated with a chemotherapy drug. Your doctor inserts the beads into the artery that feeds the tumor. The beads block blood flow while the drug destroys the cancer cells.
- Tumor ablation: Using a needle or probe inserted into the tumor, we apply microwaves, heat, or cold to destroy it.
Radiation therapy destroys cancer cells and slows the growth of tumors using high-energy X-rays. Types of radiotherapy used to treat VHL-related tumors include:
- External beam therapy
- Intensity-modulated radiotherapy
- Stereotactic radiosurgery
Stereotactic radiosurgery is a precise treatment that delivers an intense dose of radiation to the tumor while limiting exposure to surrounding tissues. Stanford Health Care pioneered this technology and treated the first patient with this state-of-the-art radiosurgery system, the CyberKnife, in 1994. Ours is among the most experienced centers in the world using stereotactic radiosurgery to treat patients with hemangioblastomas.
Depending on the type of tumor, surgery may be the most effective treatment. The goal of surgery is to remove as much of the tumor as possible. Your doctor may combine surgery with other treatments, such as medical or radiation therapy.
For brain and spinal cord tumors, our neurosurgeons use microsurgical procedures whenever possible. During microsurgery, we use tiny instruments and a surgical microscope to remove tumors while limiting damage to the surrounding tissue.
For tumors in the kidney, adrenal gland and pancreas, our surgeons use laparoscopic and robotic-assisted procedures whenever possible. These procedures are less invasive than open surgery and shorten your recovery time.
Clinical Trials for Von Hippel-Lindau Syndrome
Clinical trials are research studies that evaluate a new medical approach, device, drug, or other treatment. As a Stanford Health Care patient, you may have access to the latest advanced clinical trials.
Open trials refer to studies that are currently recruiting participants or that may recruit participants soon. Closed trials are not currently enrolling additional patients.
To request an appointment, call: 650-497-7777