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Von Hippel-Lindau Syndrome Care at Stanford Health Care

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Endocrine Surgeons

Endocrine surgeons have advanced training in the care of benign and cancerous endocrine tumors. They treat a range of disorders impacting the body’s endocrine system through open and minimally invasive surgery of the adrenal, thyroid, and parathyroid glands, as well as neuroendocrine cells. 



A geneticist is a medical doctor with specialized training to evaluate, diagnose, and treat individuals and families with genetic conditions. 


Interventional Neuroradiologists

Interventional neuroradiologists are doctors with advanced training in radiology and neurology who treat conditions affecting the brain, spinal cord, and nerves. They perform minimally invasive procedures using thin tubes (catheters) inserted through blood vessels to access treatment areas. 


Medical Oncologists

Medical oncologists have specialized training in diagnosing and treating cancer using medications, including chemotherapy, immunotherapy, hormone therapy, and targeted therapy. 



A neurologist specializes in neurology (brain, spinal cord, and nervous system care), epilepsy, and seizure disorders. They are experts in using medications and other nonsurgical options to treat epilepsy and seizures.


Neurologic Oncologists

Neuro-oncologists specialize in diagnosing and treating cancerous tumors of the brain and spinal cord. They treat these cancers using medications, including chemotherapy and biologic therapy, such as targeted therapy. Neuro-oncologists often serve as your main health care provider, coordinating your treatment among several specialists. 



A neuro-ophthalmologist specializes in visual problems related to the nervous system, including loss of sight due to injury to the brain or optic nerves. 



A neurotologist is a type of otolaryngologist (ENT) who provides medical and surgical care for nerve disorders and tumors affecting the ears, balance system, facial nerves, temporal bone, skull base, and related structures of the head and neck. 



A neurosurgeon is a physician who specializes in the diagnosis and surgical treatment of central and peripheral nervous system disorders. 


Pain Management Specialists

These anesthesiologists are medical doctors who perform nonsurgical and minimally invasive procedures to alleviate pain. 


Radiation Oncologists

Radiation oncologists have specialized training in using high-energy radiation to destroy cancer or prevent its spread while protecting healthy tissue. 


Urologic Surgeons

Urologic surgeons specialize in diagnosing and managing cancers affecting the genitourinary tract and male reproductive organs. 


Advanced Practice Provider

These health care providers work with your doctors to help with diagnosis and treatment. APPs may recommend medications, lifestyle changes, and services such as genetic counseling. An APP can be a nurse practitioner (NP), physician assistant (PA), or clinical nurse specialist (CNS).


Your Extended Care Team


Dentists specializing in cancer care assist with preventing or lessening the side effects of radiation therapy on the mouth, teeth, and salivary glands.


Nurses and Nurse Coordinators (RNs)

Nurses and nurse coordinators are registered nurses who coordinate your care with your medical team. They guide you from your first contact through follow-up care and help you find counseling, financial, and other support services. 


Care Coordinators

Care coordinators provide you with information and assistance before and during your appointment.

  • Medical Assistant: Medical assistants work with our team to help provide care. They may prepare you for an examination, assist your doctor, or take your vital signs before your appointment.
  • Patient Care Coordinator: Our patient care coordinators help you with scheduling appointments and accessing your lab results. They are your first line of contact before you see your provider and will guide you during your care.
  • Patient Access Representative: Patient access representatives can answer your questions about health insurance coverage, help you apply for health insurance, and refer you to our financial counselors. 


Research Coordinators

Our researchers lead efforts to advance the understanding of neurogenetic disorders and their treatment. Research coordinators help screen candidates for possible participation in clinical research trials. 


Clinical Trials for Von Hippel-Lindau Syndrome

Our Clinics

At our Neurogenetic Oncology Program, you will find a multidisciplinary team of internationally recognized specialists. We focus on delivering personalized care to address your condition and improve your quality of life. We always accept new patients and take many insurance plans, including Medicare and Medi-Cal. 

Neurogenetic Cancer
213 Quarry Road
Palo Alto, CA 94304
Phone: 650-497-7777 Getting Here »
Make An Appointment

To request an appointment, call: 650-497-7777

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