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Why Choose Stanford Medicine?
Von Hippel-Lindau Syndrome Care at Stanford Health Care
At Stanford Health Care’s Neurogenetic Cancer Program, you will find world-class care for VHL. Our internationally recognized specialists offer care using a team-based approach. You can rely on our advanced diagnostic and treatment methods to support you and your family members.
Our von Hippel-Lindau Program, one of Stanford Health Care’s Neurogenetic Cancer Programs, brings together specialists from across Stanford Health Care to match your unique needs. This approach ensures you receive coordinated, personalized care and support to help you manage this complex condition.
Connect to Care
Let us help find personalized care options for you and your family.
Your Circle of Care
A diagnosis of a neurological condition—and the changes it may bring—can be unsettling. We offer you and your caregivers the personalized support you need at every step. Your team listens to you and develops a plan for your situation. And you’ll work with the same team from diagnosis throughout treatment, so we can get to know you and your needs.
Access That Empowers
We make access to care as simple as possible. We anticipate what you need and provide support when you need it. Our network of locations puts our services within your reach. User-friendly digital health tools help you stay connected with your care team. We accept most insurance plans and offer discounted transportation, short-stay options, and international travel and translation services. We help make sense of the details, so you can make decisions that are right for you.
Innovation Through
Clinical Research
Stanford Health Care Neuroscience actively participates in groundbreaking research and clinical trials to evaluate new and better ways to diagnose, treat, and manage neurological disorders. Participating in a trial may give you access to experimental therapies that are not available otherwise. We also partner with the Wu Tsai Neurosciences Institute to better understand the brain, develop new treatments for brain disorders, and promote brain health.
Your care team includes an array of medical and support specialists who surround you with comprehensive, compassionate care. No matter your physical, emotional, or daily living needs, we strive to minimize the impact VHL has on your life.
Your Doctors
Neuro-oncologists specialize in diagnosing and treating cancerous tumors of the brain and spinal cord. They treat these cancers using medications, including chemotherapy and biologic therapy, such as targeted therapy. Neuro-oncologists often serve as your main health care provider, coordinating your treatment among several specialists.
Your Extended Care Team
Care coordinators provide you with information and assistance before and during your appointment.
- Medical Assistant: Medical assistants work with our team to help provide care. They may prepare you for an examination, assist your doctor, or take your vital signs before your appointment.
- Patient Care Coordinator: Our patient care coordinators help you with scheduling appointments and accessing your lab results. They are your first line of contact before you see your provider and will guide you during your care.
- Patient Access Representative: Patient access representatives can answer your questions about health insurance coverage, help you apply for health insurance, and refer you to our financial counselors.
Nutrition
Discover nutrition services designed specifically for coping with cancer
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Health Library
Access free, reliable information about cancer and other health topics
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Neuro Care Services
Connect you and your loved ones to personalized, supportive services before, during, and after your treatment.
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Clinical Trials for Von Hippel-Lindau Syndrome
Clinical trials are research studies that evaluate a new medical approach, device, drug, or other treatment. As a Stanford Health Care patient, you may have access to the latest advanced clinical trials.
Open trials refer to studies that are currently recruiting participants or that may recruit participants soon. Closed trials are not currently enrolling additional patients.
Our Clinics
At our Neurogenetic Oncology Program, you will find a multidisciplinary team of internationally recognized specialists. We focus on delivering personalized care to address your condition and improve your quality of life. We always accept new patients and take many insurance plans, including Medicare and Medi-Cal.


Palo Alto, CA 94304
Phone: 650-497-7777 Getting Here
To request an appointment, call: 650-497-7777