Skip to main content
 
Notice: Users may be experiencing issues with displaying some pages on stanfordhealthcare.org. We are working closely with our technical teams to resolve the issue as quickly as possible. Thank you for your patience.
 

See our updated masking policy

Stanford Health Care

Research for all: building a diverse researcher community for the All of Us Research Program.

Research for all: building a diverse researcher community for the All of Us Research Program. Journal of the American Medical Informatics Association : JAMIA Baskir, R., Lee, M., McMaster, S. J., Lee, J., Blackburne-Proctor, F., Azuine, R., Mack, N., Schully, S. D., Mendoza, M., Sanchez, J., Crosby, Y., Zumba, E., Hahn, M., Aspaas, N., Elmi, A., Alerté, S., Stewart, E., Wilfong, D., Doherty, M., Farrell, M. M., Hébert, G. B., Hood, S., Thomas, C. M., Murray, D. D., Lee, B., Stark, L. A., Lewis, M. A., Uhrig, J. D., Bartlett, L. R., Rico, E. G., Falcón, A., Cohn, E., Lunn, M. R., Obedin-Maliver, J., Cottler, L., Eder, M., Randal, F. T., Karnes, J., Lemieux, K., Lemieux, N., Lemieux, N., Bradley, L., Tepp, R., Wilson, M., Rodriguez, M., Lunt, C., Watson, K. 2024

Abstract

The NIH All of Us Research Program (All of Us) is engaging a diverse community of more than 10 000 registered researchers using a robust engagement ecosystem model. We describe strategies used to build an ecosystem that attracts and supports a diverse and inclusive researcher community to use the All of Us dataset and provide metrics on All of Us researcher usage growth.Researcher audiences and diversity categories were defined to guide a strategy. A researcher engagement strategy was codeveloped with program partners to support a researcher engagement ecosystem. An adapted ecological model guided the ecosystem to address multiple levels of influence to support All of Us data use. Statistics from the All of Us Researcher Workbench demographic survey describe trends in researchers' and institutional use of the Workbench and publication numbers.From 2022 to 2024, some 13 partner organizations and their subawardees conducted outreach, built capacity, or supported researchers and institutions in using the data. Trends indicate that Workbench registrations and use have increased over time, including among researchers underrepresented in the biomedical workforce. Data Use and Registration Agreements from minority-serving institutions also increased.All of Us built a diverse, inclusive, and growing research community via intentional engagement with researchers and via partnerships to address systemic data access issues. Future programs will provide additional support to researchers and institutions to ameliorate All of Us data use challenges.The approach described helps address structural inequities in the biomedical research field to advance health equity.

View details for DOI 10.1093/jamia/ocae270

View details for PubMedID 39545358