An Interactive Program to Improve Care for Children With CF

Trial ID or NCT#

NCT00185549

Status

not recruiting iconNOT RECRUITING

Purpose

The purpose of this study is to evaluate the impact of an internet based program for children and families (CF.DOC) with Cystic Fibrosis on health outcomes. The program provides for virtual visits, a personal health record, messaging with clinicians and several tools for monitoring self-care behaviors. We anticipate that this intervention will provide for more intensive monitoring and feedback of self-care behaviors and will lead to improved health status and in particular nutritional status

Official Title

An Interactive Program to Improve Care for Children With Cystic Fibrosis

Eligibility Criteria

Ages Eligible for Study: 1 Month to 21 Years
Sexes Eligible for Study: ALL
Accepts Healthy Volunteers: No
Inclusion Criteria:
  1. Patients with Cystic Fibrosis diagnosed by a sweat chloride analysis and/or testing for the CF gene between the ages of 1 month and 21 years of age. Patients must also be English speaking -
Exclusion Criteria:
  1. Non-English speaking patients
    1. -
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Investigator(s)

David Bergman

View on ClinicalTrials.gov