Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry

Trial ID or NCT#

NCT02418442

Status

recruiting iconRECRUITING

Purpose

Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.

Official Title

Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry

Eligibility Criteria

Ages Eligible for Study: Younger than 21 Years
Sexes Eligible for Study: All
Accepts Healthy Volunteers: No
Inclusion Criteria:
  1. 1. Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A). 2. Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures. 3. Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.
Exclusion Criteria:
  1. 1. Greater than 21 years of age at the time of enrollment.

Investigator(s)

Joyce Hsu
Imelda Balboni
Jennifer Frankovich
Dana Gerstbacher
Rajdeep Pooni
Cathy Mei Tsin
Tzielan Lee
Elizabeth Mellins

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Contact

Joseph Benavides