Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

Trial ID or NCT#

NCT02249923

Status

recruiting iconRECRUITING

Purpose

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.

Official Title

Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

Eligibility Criteria

Ages Eligible for Study: 1 Day to 21 Years
Sexes Eligible for Study: All
Accepts Healthy Volunteers: No
Inclusion Criteria:
  1. - The subject's age of onset of pulmonary hypertension must be prior to age 18 years - The person providing consent must be able to read either Spanish or English. - The subject (and/or parent/legal guardian) must be able to provide informed consent
Exclusion Criteria:
  1. - Diagnosed with pulmonary hypertension after age 18 - Refusal to sign informed consent
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Contact us to find out if this trial is right for you.

Contact

Jeffrey Feinstein, MD

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View on ClinicalTrials.gov