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Growing Up With Sickle Cell Disease: A Pilot Study of a Transition Program for Adolescents With Sickle Cell Disease JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY Smith, G. M., Lewis, V. R., Whitworth, E., Gold, D. T., Thornburg, C. D. 2011; 33 (5): 379–82

Abstract

We implemented the Duke Sickle Cell Disease (SCD) Transition Program for adolescents with SCD and investigated the knowledge about SCD; concerns and emotions about transitioning; and the initial impact of the Transition Program. Thirty-three adolescents participated in the initial study. Gaps in knowledge included ethnicities affected by SCD and inheritance of SCD. Adolescents were primarily concerned about transferring to a new medical team. There was a mix of both positive and negative emotions that varied over time. Overall, we have identified educational gaps and concerns and emotions about transitioning, which we will address through the Duke SCD Transition Program.

View details for DOI 10.1097/MPH.0b013e318211bb2e

View details for Web of Science ID 000291924700023

View details for PubMedID 21602723