Pulmonary Fibrosis Foundation Patient Registry
Trial ID or NCT#
NCT02758808
Status
NOT RECRUITING
Purpose
The Pulmonary Fibrosis Foundation Patient Registry will collect data on at least 2,000 patients with interstitial lung disease (ILD) at approximately 40 clinical sites in the US. The Registry is targeting enrollment of approximately 60% of the 2,000 ILD participants to have idiopathic pulmonary fibrosis (IPF). The aim of the Registry is to create a cohort of well-characterized patients with interstitial lung disease (ILD) for participation in retrospective and prospective research
Official Title
Pulmonary Fibrosis Foundation Patient Registry
Eligibility Criteria
Ages Eligible for Study: 18 Years to 99 Years
Sexes Eligible for Study: ALL
Accepts Healthy Volunteers: No
Inclusion Criteria:
- 1. 18 years old or older2. Understand and sign the informed consent document3. ILD Diagnosis must be made / confirmed at a participating Registry center.
- 1. The diagnostic evaluation must include, at a minimum, a medical history, physical examination, pulmonary function testing and a computerized tomography (CT) scan of the chest. 2. If patients exhibit another pulmonary disease (such as emphysema or asthma), the primary disease must be ILD.4. Anticipated additional follow up at the Registry center within one year.
Exclusion Criteria:
- 1. Diagnosed with:
- 1. Sarcoid2. Lymphangioleiomyomatosis (LAM)3. Pulmonary alveolar proteinosis (PAP)4. Cystic fibrosis (CF)5. Amyloidosis
Investigator(s)
Joshua Mooney
Pulmonologist,
Interstitial lung disease specialist,
Lung transplant specialist,
Heart and lung transplant specialist
Clinical Assistant Professor, Medicine - Pulmonary, Allergy & Critical Care Medicine
View on ClinicalTrials.gov
