Limb-Girdle Muscular Dystrophy Treatment at Stanford

Limb-girdle muscular dystrophies do not only affect the muscles. These disorders may affect the heart, lungs, digestive system and other body systems.

At Stanford, we take a comprehensive, holistic approach to treating individuals with any type of muscular dystrophy. We bring expert clinicians from multiple disciplines together under one roof to consult on your case regularly.

Stanford MDA Clinic: What to Expect

When you attend our MDA Clinic, you likely will find yourself in the same room with all of your care team members at once: neuromuscular, cardiovascular, pulmonary and others. This approach saves you from having to travel from one clinic to another on multiple appointments.

We also use precise, personalized medical treatments based in part on the results of your genetic testing.

Treatment Options for Limb-Girdle Muscular Dystrophy

Treatment for limb-girdle muscular dystrophy may include:

• Medications to relieve symptoms
• Physical therapy for muscle weakness
• Respiratory therapy for breathing issues
• Occupational therapy for swallowing difficulties
• Behavioral therapy to address cognitive function
• Diet and nutrition counseling for patients with difficulty chewing or swallowing
• Social work consultations to connect you with community resources

Our goal with treatment is to enhance quality of life. There are many research studies investigating medical treatments for limb girdle muscular dystrophy.

Limb-Girdle Muscular Dystrophy Clinical Trials

Stanford investigators are participating in research studies to increase their understanding of genes that may cause limb-girdle muscular dystrophy. We also participate in investigations of new treatment approaches for this disease.