Stanford’s Center for Advanced Lung Disease is one of a few in the country providing specialty care for patients with cystic fibrosis, interstitial lung disease, emphysema, pulmonary hypertension, advanced cardiopulmonary diseases, and lung transplant. Since performing the first successful heart-lung transplant more than thirty years ago, our team of pulmonary experts continues to develop innovative strategies for the treatment of advanced lung disease.
The group of specialists involved in the care of patients who are undergoing a transplant procedure is often referred to as the "transplant team." Each individual works together to provide the best chance for a successful transplant and ongoing post-transplant care and support. The lung transplant team consists of:
Transplant surgeons—doctors who specialize in transplantation and who will be performing the surgery. The transplant surgeons coordinate all team members. They follow a patient before the transplant and continue to follow the patient after the transplant and after discharge from the hospital.
Pulmonologists—doctors who specialize in the function and disease of the lungs. Pulmonologists will help manage a patient before and after the surgery.
Transplant nurse coordinator—a nurse who organizes all aspects of care provided to a patient before and after the transplant. The nurse coordinator will provide patient education and coordinate the diagnostic testing and follow-up care.
Social workers—professionals who will provide support to your family and help your family deal with many issues that may arise including lodging and transportation, finances, and legal issues.
Financial coordinators—dedicated transplant financial coordinators will work work closely with yourself and your family supporting your insurance needs.
Dietitians—professionals who will help a patient meet his/her nutritional needs before and after the transplant. They will work closely with you and your family.
Physical therapists—professionals who will help a patient become strong and independent with movement and endurance after the transplantation.
Pastoral care—chaplains who provide spiritual care and support.
Nurse practitioner—an advanced practice nurse who, in collaboration with transplant pulmonologists, medically manages/treats transplant patients.
Other team members—several other team members will evaluate a patient/child before transplantation and provide follow-up care, as needed. These include, but are not limited to, the following:
Patsy Nix never expected to need a transplant to treat her lung disease. The 500th lung transplant patient at Stanford, she is thrilled to breathe freely again.
Clinical trials are research studies that evaluate a new medical approach, device, drug, or other treatment. As a Stanford Health Care patient, you may have access to the latest, advanced clinical trials.
Open trials refer to studies currently accepting participants. Closed trials are not currently enrolling, but may open in the future.
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Stanford Health Care provides comprehensive services to refer and track patients, as well as the latest information and news for physicians and office staff. For help with all referral needs and questions, visit Referring Physicians.
HOW TO REFER
Different programs in our clinic require different records and test results. Use the following checklists to determine what to send when making a referral. When you are ready to make a referral, fax a referral form with supporting documentation to 650-723-3106.
Heart-Lung and Lung Transplant Program
Patient Referral Form
Patient phone number, address, and Social Security Number
History and physical, clinic notes, or hospital discharge summary
Pulmonary function studies
Thoracic CT scan report (if performed)
Sputum cultures and sensitivities for patients with cystic fibrosis or bronchiectasis
Copy(s) of heart catheterization report(s) if performed
Adult Cystic Fibrosis Program
Patient Referral Form
History and physical notes, including clinic or office notes and current medications
Hospital discharge if in last two years
Recent PFT or spirometry
Recent Sputum cultures and sensitivities
Recent CT scan
Interstitial Lung Disease Program
Patient Referral Form
Most recent Pulmonary Function Tests (breathing tests)
CDs of recent high resolution CT scan of the chest, any other recent CT scans
Any lung biopsy reports, including slides
Recent lab work, including any serology testing done to identify autoimmune disease
Recent history, office visit, and physical notes from local pulmonologist or primary care provider
Current list of medications
Discharge summary from any recent hospitalizations
"Six Minute Walk" or other oxygen exercise testing
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