Close
Open
Share on Facebook
Twitter
Google+
Email
 
Notice: Users may be experiencing issues with displaying some pages on stanfordhealthcare.org. We are working closely with our technical teams to resolve the issue as quickly as possible. Thank you for your patience.
Menu
Search
Menu
Search
  • Doctors
  • Clinics & Locations
  • Conditions & Treatments
  • Patients & Visitors
  • MyHealth
  • Billing
  • Insurance
  • Medical Records
  • Support Groups
  • Financial Assistance
  • Locations and Parking
  • Visiting Hours
  • Hospital Check-in
  • International Patients
  • Contact Us
View All Information for Patients & Visitors »
We are available to assist you 24/7.
650-498-3333
GuestServices@stanfordhealthcare.org

New to MyHealth?

Manage Your Care From Anywhere.

Access your health information from any device with MyHealth.  You can message your clinic, view lab results, schedule an appointment, and pay your bill.

ALREADY HAVE AN ACCESS CODE?

Activate Account

DON'T HAVE AN ACCESS CODE?

Create a New Account

NEED MORE DETAILS?

Learn More about MyHealth »

MyHealth for Mobile

Get the iPhone MyHealth app »
Get the Android MyHealth app »

WELCOME BACK

Forgot Username or Password?
Need Help?

Clear

Hereditary Hemorrhagic Telangiectasia

  • About
  • About
Overview
Symptoms
  • Prevalence
  • Recurrent nosebleeds
Causes
Diagnosis
Treatments
Overview
Symptoms
  • Prevalence
  • Recurrent nosebleeds
Causes
Diagnosis
Treatments

Hereditary Hemorrhagic Telangiectasia (HHT)

Hereditary hemorrhagic telangiectasia is a genetic disorder that affects about one in 5,000 people and causes arterial blood to flow directly into the veins, creating weakened ballooned vessels that can rupture. Interventional radiologists are one of the few specialists who can permanently treat this disease that affects approximately half a million people worldwide. As vascular experts, interventional radiologists perform embolization - blocking the blood flow to the affected area - to prevent a life-threatening rupture.

Most patients with Hereditary Hemorrhagic Telangiectasia function normally and 40 percent have brain or lung involvement that may lead to unexpected severe complications. Physicians treating complications often don't realize that the underlying disorder is Hereditary Hemorrhagic Telangiectasia. As a result, most patients are undiagnosed.

Overview of circulatory system and Hereditary Hemorrhagic Telangiectasia

In the normal circulatory system, arteries take oxygenated blood from the heart and push it out to all parts of the body under high pressure, while the veins return the blood back to the heart. Small capillaries typically connect the arteries to the veins. A person with Hereditary Hemorrhagic Telangiectasia lacks capillaries in a few blood vessels in critical locations. Arteries connect directly into veins, creating a fragile site that can rupture and bleed. These abnormal blood vessels are called telangiectasis if they involve small blood vessels (nose, stomach and small bowel) and arterioveneous malformations (AVM) if it involves a larger blood vessel (lung, brain and liver). Telangiectases often occur near the surface of the skin like the mucous membrane in the nose while AVMs appear in the internal organs of the body.

Previous Section Next Section

Clinics for Hereditary Hemorrhagic Telangiectasia (HHT)

  • Chest Clinic
    650-725-7061
  • Neurogenetic Oncology Program
    650-723-6469
  • Chest Clinic (Pulmonology)
    650-725-7061
  • Pleasanton
    925-734-3376
  • Interventional Radiology
    650-724-7362
  • Hereditary Hemorrhagic Telangiectasia Center of Excellence
    650-498-1764

Hereditary Hemorrhagic Telangiectasia (HHT)
Hereditary Hemorrhagic Telangiectasia, or Osler-Weber-Rendu (OWR), is a genetic disorder of the blood vessels. Symptoms include nosebleeds and red spots.
Hereditary Hemorrhagic Telangiectasia

Chest Clinic
650-725-7061
Neurogenetic Oncology Program
650-723-6469
Chest Clinic (Pulmonology)
650-725-7061
Interventional Radiology in Pleasanton
925-734-3376
Interventional Radiology
650-724-7362
Hereditary Hemorrhagic Telangiectasia Center of Excellence
650-498-1764

Causes
Symptoms
Diagnosis
Treatments

  • Find a Doctor
  • Find Conditions & Treatments
  • Find a Stanford clinic
  • For Patients & Visitors
  • Billing
  • Insurance
  • Hospital Check-in
  • Contact Us
  • Get a Second Opinion
  • Make a Gift
  • About Us
  • Quality & Safety
  • Annual Report
  • Stanford Health Care Now
  • For Healthcare Professionals
  • Referring Physicians
  • Nursing
  • Allied Healthcare Professionals
First Responders
  • Newsroom
  • Careers
  • Volunteering
  • Vendors
  • University HealthCare Alliance
  • Stanford Health Care – ValleyCare
  • Stanford Medicine
  • Stanford Children's Health
  • Stanford University
  • Legal
  • Privacy
  • Code of Conduct
  • |   Notice of Nondiscrimination     ©2019 Stanford Health Care. All Rights Reserved
Home
Close
Doctors
Clinics & Locations
Conditions & Treatments
Clinical Trials
MyHealth Login

Patients & Visitors
Billing
Insurance
Financial Assistance
Medical Records
Contact Us
Get a Second Opinion
Healthcare Professionals
Referring Physicians
Nursing
Allied Healthcare
About Us
Quality & Safety
Careers
Newsroom
Make a Donation
Stanford Health Care Now
Close