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Hereditary Hemorrhagic Telangiectasia Symptoms
Symptoms of HHT
The location of the telangiectases or AVMs determines the types of symptoms a person with HHT might experience. Symptoms may include:
- Nosebleeds
- Digestive tract bleeding that causes black stools
- Coughing up blood
- Low red blood cell count
- Red or purple spots on the face or hands
- Shortness of breath
- Exercise intolerance or fatigue
- Migraine headaches
- Seizures
- Abdominal pain
- Leg swelling
AVMs in the brain may cause headaches, stroke, or even brain hemorrhage. When AVMs are in the lungs, there is a risk of life-threatening rupture in the lungs, stroke, or development of a brain abscess.
Clinical Trials
Clinical trials are research studies that evaluate a new medical approach, device, drug, or other treatment. As a Stanford Health Care patient, you may have access to the latest, advanced clinical trials.
Open trials refer to studies currently accepting participants. Closed trials are not currently enrolling, but may open in the future.
HHT Center of Excellence
You can access Stanford’s expertise and compassionate care for HHT through our Center of Excellence. We always accept new patients, and we take many insurance plans, including Medicare and Medi-Cal.
