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As a leading medical facility, our specialists have extensive experience with rare, complex conditions such as neurofibromatosis. We bring together doctors with expertise that matches your unique needs to provide personalized care. Our goal is to effectively manage your symptoms and monitor you closely to identify and treat new problems early.
- An internationally recognized team of specialists with expertise in the latest tests and treatments for NF.
- Advanced treatment options, including interventional neuroradiology, CyberKnife®, and minimally invasive neurosurgery procedures.
- Team-based approach with world-renowned neurologists, neurosurgeons, interventional neuroradiologists, neuro-oncologists, geneticists, and other specialists working collaboratively to meet your unique needs.
- Clinical trials to provide early access to promising therapies available only at Stanford Medicine.
- Comprehensive support services to help you and your family focus on health and healing.
- Ease of access to treatment at our Neuroscience Health Center, a state-of-the-art facility that provides complete care at a single, convenient location.
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Let us help find personalized care options for you and your family.
Interested in an Online Second Opinion?
The Stanford Medicine Online Second Opinion program offers you easy access to our world-class doctors. It’s all done remotely, and you don’t have to visit our hospital or one of our clinics for this service. You don’t even need to leave home!
Visit our online second opinion page to learn more.
Types of Neurofibromatosis Treatment
Our specialists combine deep knowledge, advanced technology, and a team-based approach to ensure your care is in good hands. You receive a specific treatment plan based on your condition and personal goals.
In some cases, you may not need treatment. For benign café-au-lait spots and neurofibromas, surgical removal is an option, but the lesions may return. If tumors are not causing symptoms, your doctor may choose to watch-and-wait. This strategy involves monitoring you closely to identify changes early and intervene when the time is right.
For tumors that are symptomatic or that are or could become malignant, your doctor may recommend:
The most effective treatment for tumors in neurofibromatosis is often surgical removal. Our neurosurgeons use microsurgical procedures whenever possible. During microsurgery, we use very small instruments and a surgical microscope to remove tumors while limiting damage to the surrounding tissue.
Anticancer drugs given orally or intravenously can destroy cancerous tumor cells or slow their growth. Most neurofibromas are not aggressive and may not respond to medical therapy. Doctors may treat more aggressive neurofibromas with medications, such as:
CyberKnife radiosurgery is an advanced treatment that uses high-dose radiation beams to destroy tumor cells. CyberKnife is painless and highly precise, limiting damage to nearby healthy tissues. The Stanford CyberKnife Stereotactic Radiosurgery Program is among the most advanced in the world. We’re renowned for developing this innovative technology in 1994.
Radiation therapy uses radiation to destroy cancer cells and slow the growth of tumors. It is safe and often used in combination with surgery or medical therapy. Types of radiotherapy include:
- External beam therapy
- Intensity-modulated radiotherapy
- Brachytherapy/localized therapy
- Stereotactic body radiation therapy
Clinical Trials
Clinical trials are research studies that evaluate a new medical approach, device, drug, or other treatment. As a Stanford Health Care patient, you may have access to the latest, advanced clinical trials.
Open trials refer to studies that are currently recruiting participants or that may recruit participants soon. Closed trials are not currently enrolling additional patients.
To request an appointment, call 650-497-7777.