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Stanford Health Care – Now
Partnering With Patient Organizations for Inherited Heart Disease
03.12.2019
Doctors at the Stanford Center for Inherited Cardiovascular Disease work closely with patient organizations to support families with inherited heart disease.
Joshua W. Knowles, MD, cardiologist and assistant professor of cardiovascular medicine at the Stanford University Medical Center, talks about building relationships with patient-led organizations and industry partners.
Dr. Knowles and other Stanford cardiovascular specialists have developed relationships with technology companies, research organizations, and patient-led organizations. Working with groups such as the Marfan Foundation, the Familial Hypercholesterolemia Foundation, and the Hypertrophic Cardiomyopathy Association, Stanford teams host patient-members at annual patient days.
Each patient day focuses on a specific condition so the attendees can learn about the latest medical advancements. The patients also share their experiences with the doctors and their teams, providing key insight—from a patient’s perspective—into daily life with an inherited cardiovascular disease.
The patients benefit from Stanford’s research experience, and the Stanford teams benefit by learning more from patients, which helps drive future research and the latest standards for patient care. Through these relationships, Stanford brings patient needs to the forefront as they develop research priorities. By translating their research into the best possible patient outcomes, they support patients at Stanford, across the country, and around the world.
Learn More
Stanford Center for Inherited Cardiovascular Disease: https://stanfordhealthcare.org/medical-clinics/center-inherited-cardiovascular-disease.html
Joshua W. Knowles, MD: https://stanfordhealthcare.org/doctors/k/joshua-knowles.html
About Stanford Health Care
Stanford Health Care seeks to heal humanity through science and compassion, one patient at a time, through its commitment to care, educate and discover. Stanford Health Care delivers clinical innovation across its inpatient services, specialty health centers, physician offices, virtual care offerings and health plan programs.
Stanford Health Care is part of Stanford Medicine, a leading academic health system that includes the Stanford University School of Medicine, Stanford Health Care, and Stanford Children’s Health, with Lucile Packard Children's Hospital. Stanford Medicine is renowned for breakthroughs in treating cancer, heart disease, brain disorders and surgical and medical conditions. For more information, visit: www.stanfordhealthcare.org.
CARE AT STANFORD
Learn how we provide lifelong care for individuals and families with hereditary heart diseases such as arrhythmia, cardiomyopathy, and high cholesterol.
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