Pediatric to Adult Care of Genetic Heart Disorders
At the Stanford Center for Inherited Cardiovascular Disease, we specialize in the care of patients and families with genetic disorders of the heart and blood vessels. Our care extends from the youngest to the oldest members of your family.
Care and Treatment of Inherited Cardiovascular Diseases
We realize the importance of a close working relationship between our child and adult cardiologists to the outstanding nursing and genetic counseling teams. We offer state-of-the art imaging procedures and the very latest in medical and surgical therapies for treating inherited cardiovascular disease.
We always strive to be the best we can be, so that you can live your life to the fullest.
Transitioning from pediatric to adult cardiology
The Stanford Center for Inherited Cardiovascular Disease (SCICD) is committed to caring for families with genetic cardiomyopathies and channelopathies across the lifespan. The pediatric team at Lucile Packard Children's Hospital (LPCH) cares for children and adolescents until eighteen years of age. A staged transition process in early adolescence is implemented in preparation for adult-oriented care.
Our general approach towards transition to adult cardiology care includes:
A multidisciplinary team involved in a coordinated care model.
Joint meetings twice a month to discuss families and/or transitioned adolescents.
Introduction to an adult team member at the last LPCH clinic visit.
Ongoing education and guidance on self-care (i.e. knowing medications, making appointments, calling in prescription refills).
Guidance on the shifting parental role from caregiver to supporter.
Do you know if you're at risk for heart disease? How healthy is your heart? In recognition of American Heart Month this February, stay heart healthy and celebrate your heart with us.
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