Center for Marfan Syndrome and Related Aortic Disorders

Yes, we offer consultative diagnostic and follow-up services for those patients thought to have other related aortic disorders that include familial aortic disease, Bicuspid aortic valve, aortic aneurysms, mitral valve prolapse and aortic dissection.

A thorough evaluation for the Marfan syndrome and related aortic disorders would include:

• Echocardiogram with Color/Doppler and/or CT Angiogram of the chest and abdomen
• An appointment with one of our cardiologists who specializes in Marfan syndrome and related aortic disorders which includes:
  • A thorough evaluation of the Stanford Echo/CT Angiogram and/or outside films the patient brings with them
  • A review of detailed medical and family history
  • An evaluation of outside medical records
  • A complete physical examination.

If any of these evaluations have been performed recently elsewhere, please bring this to our attention when scheduling your appointments with us.

Yes, at present we accept both physician and self-referrals.

Unfortunately, we are not in a position to diagnose anyone over the phone.

If you suspect that you have the Marfan syndrome or an aortic disorder based on what you have read or on the recommendation of your physician or other affected family members, then it would be appropriate to be seen for an initial evaluation.
 
If you already carry a diagnosis of Marfan syndrome or a diagnosis of a known aortic disorder and wish to be seen, this is certainly appropriate.

There are so many different insurance companies and different policies written by a company that if you have questions about your policy, we ask that you call and speak with your insurance company directly. 


If you belong to an HMO or other group health care plan that requires you to get an authorization from your primary provider, please contact that individual. A written authorization from that physician authorizing each appointment and test that you will need is required before we can schedule your appointments.

You can fax these to us ahead of time by sending to 650-724-4034.
 Should your insurance company or primary care physician have questions regarding your appointments, they may call 650-725-8246 for additional information.

No, because we have not formally evaluated you yet. It would be presumptuous on our part and not in your best interest to either place or lift any physical restrictions imposed on you by other physicians.