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Center for Marfan Syndrome and Related Aortic Disorders
Multidisciplinary Center for Treating Marfan Syndrome and Related Aortic Disorders
The Center for Marfan Syndrome and Related Aortic Disorders is the largest of its kind in California and among the nation's leading centers for the diagnosis and treatment of Marfan syndrome. We ensure that patients with Marfan syndrome and aortic disorders have access to comprehensive diagnostic and management services from specialists in cardiology, cardiovascular surgery, ophthalmology, orthopedics, and genetics.
3rd Floor Clinic A31
Stanford, CA 94305
Phone: 650-725-8246 Getting Here
Our Doctors
Advanced Practice Providers
Care and Treatment of Marfan Syndrome
Treatments
At Stanford, treatment of this genetic disease involves a coordinated multidisciplinary effort. We host the most extensive program for Marfan-related thoracic aneurysm in California and are one of the largest in the United States.
The primary causes of Marfan syndrome are related to the cardiovascular sytem. Treatment options include medication therapy or surgical intervention:
- Medical management of Marfan syndrome, such as beta blockers or angiotensin receptor blockers (ARBs)
- Surgical interventions:
- Aortic root replacement
- Valve sparing root replacement
- Complex aortic surgery for dissections and aneurysms
- Mitral valve surgery, such as mitral valve repair and replacement
For Patients
Stanford Health Care is known worldwide for the advanced patient care provided by its doctors and staff. We also provide a wide range of guest services and amenities to our patients and visitors. Learn more about preparing for a hospital stay, billing and financial services, and our other support programs in Patients & Visitors.
PREPARE FOR YOUR APPOINTMENT
Please bring any relevant medical records and family information to your appointment, such as:
- Echocardiogram reports
- CT scans or MRIs of the chest and abdomen
- Dilated eye examination
- Any genetic evaluations
- Photos of various relatives
- Autopsy reports, if pertinent
International Patients
Phone: +1 650-723-8561
Email: IMS@stanfordhealthcare.org
Call us to make an appointment
For Health Care Professionals
PHYSICIAN HELPLINE
Fax: 650-320-9443
Monday–Friday, 8 a.m.–5 p.m.
Stanford Health Care provides comprehensive services to refer and track patients, as well as the latest information and news for physicians and office staff. For help with all referral needs and questions, visit Referral Information.
You may also submit a web referral or complete a referral form and fax it to 650-320-9443 or email the Referral Center at ReferralCenter@stanfordhealthcare.org.
HOW TO REFER
Fax a referral form with supporting documentation to 650-498-7835.
To refer patients directly to the Center for Marfan Syndrome and Related Aortic Disorders, please call our coordinator Mitchel Pariani, MS, LCGC at 650-725-8246.
To request an appointment, call 650-725-8246.