New Program at Stanford Treats Patients with Tumor-multiplying Diseases
Rare multi-system conditions like neurofibromatosis are challenging to treat. Daniel Knodel finds Stanford's multi-specialty approach to care simplifies his life.
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The Stanford Clinical Neurogenetic Oncology Program is the first clinic in Northern California to offer world-class care for patients with clinical neurogenetic disorders, which can cause tumors to grow inside the brain, spinal cord, organs, skin and skeletal bones.
Our team has extensive expertise in handling the most complicated cases including autosomal dominant diseases: Neurofibromatosis (NF) Type 1 and Type 2 , Schwannomatosis, Von Hippel-Lindau, Tuberous Sclerosis, Sturge Weber Syndrome, and autosomal recessive diseases such as Hemorrhagic Telangiectasia. Working with our neurology colleagues, we are also able to evaluate and manage other neurogenetic disorders, such as the genetics of movement disorders and neuromuscular diseases.
Services offered include:
Comprehensive evaluations that may include radiographic images, neuropsychology evaluation, neuro-diagnostic evaluation, eye and hearing evaluation, genetic testing, and laboratory testing
Rare multi-system conditions like neurofibromatosis are challenging to treat. Daniel Knodel finds Stanford's multi-specialty approach to care simplifies his life.
When she learned she had a malignant brain tumor, Marjorie Paulsen appreciated both the medical treatment at Stanford and the positive attitude of her care team.
Clinical trials are research studies that evaluate a new medical approach, device, drug, or other treatment. As a Stanford Health Care patient, you may have access to the latest, advanced clinical trials.
Open trials refer to studies currently accepting participants. Closed trials are not currently enrolling, but may open in the future.
For your convenience, you may check in for all same-day appointments at the Stanford Neuroscience Health Center through a centralized, check-in desk near the front lobby. In addition to all outpatient services, you also can access onsite pre-surgery consultations at the center.
New patients should call the Neurogenetics Program Coordinator at 650-736-0262 to schedule an appointment.
International Patients
Phone: +1 650-723-8561
Email: IMS@stanfordhealthcare.org
Phone: 1-866-742-4811
Fax: 650-320-9443
Monday – Friday, 8:30 a.m. – 5 p.m.
Phone: 1-800-800-1551, 24 hours - 7 days a week
Stanford Health Care provides comprehensive services to refer and track patients, as well as provides the latest information and news for physicians and office staff. For help with all referral needs and questions visit Referring Physicians.
Refer any adult patient with a clinical neurogenetic autosomal dominant or autosomal recessive genetic disease to the Clinical Neurogenetics Program Coordinator at 650-736-0262 or VeeVo@stanfordmed.org.
To request an appointment, call:
Phone:
650-723-6469
Patient Care Coordinator:
650-736-0262
Transfer Center/LifeFlight:
1-800-800-1551
Fax:
650-320-9443
MD Help Line:
1-866-742-4811