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Multidisciplinary Care of Adult Congenital Heart Defects
The Adult Congenital Heart Program— a collaboration between Lucile Packard Children's Hospital Stanford and Stanford Health Care—provides comprehensive care to patients with congenital heart defects. Our multi-disciplinary team, comprised of cardiologists board certified in adult congenital heart defects, focuses on adult care and support for patients with congenital heart defects in their adult stages of life.
Care and Treatment of Adult Congenital Heart Defects
We offer patients comprehensive diagnostics, lifestyle counseling, medical management, and interventional and surgical treatments for the full spectrum of conditions related to congenital heart defects. All of our cardiologists are board certified in adult congenital heart defects. We work with our referring providers to ensure that their congenital heart patients are managed in a sub-specialized and collaborative environment that offers the best specialty treatment options available.
What we offer
The Adult Congenital Heart Program at Stanford specializes in treating adults who were born with congenital heart defects. Although most patients will have undergone corrective surgery, some may not have been previously treated, or may have recently discovered complex residual conditions requiring therapy involving drugs, interventional procedures, or surgery.
The Adult Congenital Heart Program at Stanford offers:
Leading cardiothoracic surgeons who are experts in repairing congenital heart lesions across all age groups.
A highly specialized program specifically designed for adolescent and adult patients with congenital heart defects.
Advanced treatment options for pulmonary valve repair in patients with tetralogy of Fallot, transcatheter ASD closure, and pulmonary valve replacement, as well as alternative therapies such as ventricular assist devices and heart/lung transplantation.
Our program focuses on a smooth transition from pediatric cardiology to adult heart care that continues to provide comprehensive, ongoing care to adult patients throughout their life.
Accreditation by the ACHA ACHD acknowledges that a center has the capability to bring high quality of care to congenital heart diseaes patients. This includes:
Seamless transition from pediatric to adult oriented care with a highly specialized program specifically designed for adolescent and adult patients. Visit iheartchange.org to find resources for pediatric patients with congenital heart defects who are transitioning to adult care.
Comprehensive, multidisciplinary care from leading experts in congenital heart defects and other cardiovascular specialties.
Access to physicians and care facilities 24 hours a day, 7 days a week.
Access to clinical trials and the most advanced treatment options.
Specialized treatments for patients with a single ventricle.
Transcatheter ASD closure and pulmonary valve replacement.
Surgical pulmonary valve repair for patients with tetralogy of Fallot.
Innovative treatment options for Ebstein's anomaly.
Alternative therapies like ventricular assist devices for end stage heart failure.
Coordinated care with heart failure.
Pre-pregnancy counseling and risk stratification; contraception and genetic counseling.
High-risk pregnancy management with our maternal fetal medicine team.
We also offer a Patient and Family Advisory Council (PFAC) to provide an ongoing level of support and quality of care to patients and their families.
HUMAN RIGHTS CAMPAIGN
We are proud to have earned the 2019 recognition from the Human Rights Campaign Foundation Healthcare Equity Index.
Today there are more adult survivors of congenital heart disease than children with congenital heart disease. A new report offers guidance on other organs that can be impacted by congenital heart disease.
Jimmy Kimmel’s heart-wrenching monologue on how his newborn son was diagnosed with congenital heart disease brought awareness to this prevalent birth defect. Christy Sillman, a nurse at Lucille Packard Children’s Hospital, who was also born with the same type of heard condition as Jimmy Kimmel’s son, shares her story and how she is managing her CHD as an adult.
Clinical trials are research studies that evaluate a new medical approach, device, drug, or other treatment. As a Stanford Health Care patient, you may have access to the latest, advanced clinical trials.
Open trials refer to studies currently accepting participants. Closed trials are not currently enrolling, but may open in the future.
Before your visit, please mail or fax all records related to your congenital heart defect care. Include clinical notes, imaging reports and discs, surgical and catheterization reports, and hospital discharge summaries. Our team will review these records and order appropriate tests.
You will be emailed a patient questionnaire form; please fill this out and bring it to your appointment.
Please bring the results of any requested laboratory tests.
Arrive 15 minutes before your scheduled appointment.
Most appointments at clinic have tests scheduled prior to your medical appointment; make sure you know what time your tests are scheduled.
Plan to be at the clinic for approximately two hours.
Stanford Health Care provides comprehensive services to refer and track patients, as well as the latest information and news for physicians and office staff. For help with all referral needs and questions, visit Referring Physicians.
Patients benefit from receiving quality coordinated care offered by our multidisciplinary team. Through evidence-based practice and research, our team works together to promote the best healing environment at Stanford Health Care.
HOW TO REFER
To refer a patient, call us at 650-724-9220. Fax a referral form with supporting documentation to 650-320-9443.