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Patient & Family Partner Program: Adult Congenital Heart Disease
Adult Congenital Heart Disease
Patient & Family Advisory Council
Mission, Vision, and Guiding Principles
The Adult Congenital Heart Disease (ACHD) Patient and Family Advisory Council (PFAC) aims to improve patient care and outcomes through identifying barriers, collaborative planning with departmental and hospital staff and implementing new methods and programs to potentially help the 2,500+ CHD patients and families cared for by Stanford’s Adult Congenital Heart Program. The ACHD PFAC is comprised of a diverse group of patients and caregivers who share their experiences and knowledge to guide the improvement work and ensure all decisions encourage patient-centered care.
Hosted quarterly physician education sessions to further educate PFAC members on ACHD conditions and operations within the clinic.
Expanded our PFAC membership to represent a wider range of our patient population.
Developed the ACHD Peer-to-Peer Program to connect patients and caregivers with peer mentors who can provide emotional support through their shared experiences.
Created Facebook, Twitter and Instagram accounts to grow our social media presence, update current and prospective patients on clinic events and news, and help build a stronger Stanford ACHD community.
Increased MyHealth patient enrollment at a rate of 9% per year to provide patients with better access to their test results, appointments and communication with their medical team.
Pursuing steps necessary to host a future ACHD patient and family celebration to further unite our Stanford Health Care ACHD community.
Actively working towards expanding support services for caregivers through educational materials and additional resources.
Creating a Performance Survey and Newsletter to address concerns, communicate helpful information and further increase satisfaction among our patients and families.
Year Established 2017
Patient & Family Chairperson Alice Georgitso, MPH
Members Patient & Family Partners Ryan Dillard