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The Lung & Heart-Lung Transplant Patient and Family Advisory Council (PFAC) serves as the voice of patients and families, and works in partnership with the transplant medical staff to continually improve the patient experience in the Stanford Heart-Lung Transplant Program.
The Lung & Heart-Lung Transplant PFAC seeks to ensure that the patient and family perspective is represented in all discussions with the healthcare team through a variety of initiatives:
Providing patient and family perspectives on the overall lung transplant patient care experience
Identifying patient and family-centered care improvement strategies
Reviewing and providing feedback on patient education materials
Acting as a sounding board for the implementation or improvement of new and existing programs and facility design
Building community within the Stanford patient and caregiver population through activities or publications, such as the Lung & Heart-Lung Transplant Education/Reunion Day, and the Lung & Heart-Lung Transplant Clinic Newsletter
Providing continued engagement and education with post-transplant patients
Working in an advisory and advocacy role to enhance care specific to the Lung & Heart-Lung transplant population
The Lung & Heart-Lung Transplant PFAC is proud to be one of many PFACs contributing to improvements in patient care, services, and resources at Stanford Health Care.
Year Established 2018
Patient & Family Co-Chairs Elyse Elconin-Goldberg
Members Patient & Family Partner Luanne McKinnon
The Lung & Heart-Lung Transplant PFAC membership includes both patients and members of the medical staff. Patient members are all lung transplant recipients, and many are Peer-2-Peer mentors, offering support and mentorship to other transplant patients.